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DENVER, CO – The House today passed legislation to improve health outcomes for those living with sickle cell disease. SB24-042, sponsored by Representative Regina English and Assistant Majority Leader Jennifer Bacon, would provide outreach and support to individuals living with sickle cell disease.
“This bill would establish the Arie P. Taylor Sickle Cell Disease Outreach Program, to provide critical outreach and support to Coloradans living with sickle cell disease,” said Rep. Regina English, D-Colorado Springs. “Sickle cell disease disproportionately impacts Black communities and can cause joint pain, prolonged fatigue and reduce oxygen flow. With this bill, we can make it easier for people to access critical health care as we work toward closing the gap to accessing health care experienced by marginalized communities.”
“Long-standing inequities in our health care system have left many Black Coloradans without access to the care they need, let alone specialized care,” said Assistant Majority Leader Jennifer Bacon, D-Denver. “Our bill would establish the Arie P. Taylor Sickle Cell Disease Outreach Program to connect Coloradans living with sickle cell disease with health care resources and support. Sickle cell disease is genetic, impacting Black communities at a higher rate with prolonged fatigue and pain. Named after Colorado’s first Black female legislator and one of my predecessors in the House, the new program honors Ms. Taylor’s legacy by providing individualized support to our community and works to bridge the health care gap, especially for those who have been underserved for far too long.”
SB24-042, passed the House by a vote of 61 to 3, would work to improve health outcomes for Coloradans living with sickle cell disease. This bill would create the Arie P. Taylor Sickle Cell Disease Outreach Program within the Colorado Department of Public Health and Environment (CDPHE) to provide support to individuals living with sickle cell disease. Outreach and support services would be administered by a nonprofit organization contracted through CDPHE.
Sickle cell disease is an inherited red blood cell disorder that causes red blood cells that carry oxygen to stick together after the oxygen is released, causing blockages in the small blood vessels, anemia, and severe pain. According to the Centers for Disease Control (CDC), sickle cell disease occurs among about 1 out of every 365 Black or African-American births and occurs among about 1 out of every 16,300 Hispanic-American births.